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Toronto family of child with rare SPG50 disease raises $3 million for gene therapy

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For the first time ever, gene therapy is being used to treat an "ultra-rare disease" in a young Toronto boy.

Michael Pirovolaki has hereditary spastic paraplegia type 50, otherwise known as SPG50 — a neurodegenerative disease so rare, it's believed Michael may be the only child in Canada afflicted by the condition.

As Caryn Lieberman reports, his family raised more than $3 million to pay for the research and development of a treatment to help save their son.

For more info, please go to https://globalnews.ca/news/9060326/spastic-paraphlegia-ultra-rare-disease-gene-therapy/

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Category
U.S. & Canada
Tags
global news, Canada, gene therapy
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