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Patients struggle to afford new drug for muscular atrophy

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Today is Mila Marzouk's first birthday, but it is unlikely she will see her second unless her parents can find more than $2m.
Mila has skeletal muscular atrophy, a genetic disease that affects more than 10,000 babies every year.
A new drug can save them, but in most places, it is not funded.

Al Jazeera's Charlotte Bellis reports.

Ayah Lundt - https://helpayah.dk/EN/index.html

Mila Marzouk - https://www.gofundme.com/f/baby-health-fundraiser?utm_campaign=p_cp+share-sheet&utm_medium=copy_link_all&utm_source=customer

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#Zolgensma #SpinalMuscularAtrophy #SMA
Category
World
Tags
al jazeera, al jazeera english, aljazeera
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