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A Brief But Spectacular take on raising a young daughter with a degenerative disease

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When Beth Papanastasiou's daughter Bella was born, she was diagnosed with a rare, degenerative genetic disorder and given 18 months to live. That was more than four years ago. Papanastasiou shares her Brief But Spectacular take on the important role palliative care has played in her family's journey as they continue to create meaningful memories for Bella.

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Category
U.S. & Canada
Tags
Brief But Spectacular, parenting, degenerative disease
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